Enacting Appreciations

Beyond the Patient Perspective

Authors

  • Jeannette Pols University of Amsterdam

DOI:

https://doi.org/10.48006/2358-0097/V9N1.E9105

Keywords:

ethnography, health research, language, patient perspective, performativity, representation

Abstract

The “patient perspective” serves as an analytical tool to present patients as knowing subjects in research, rather than as objects known by medicine. This paper analyses problems encountered with the concept of the patient perspective as applied to long-term mental health care. One problem is that “having a perspective” requires a perception of oneself as an individual and the ability to represent one’s individual situation in language; this excludes from research patients who do not express themselves verbally. Another problem is that the idea of “talk” as a representation of the world ignores the fact that talk is also performative in the world: it requires, at least, the ability to deal with an interview situation. To think up alternative ways of including patients as subjects in research, I develop an approach that takes this performativity as a starting point. Analysing practical situations and activities, I argue that patients enact appreciations, making known what they like or dislike by verbal or non-verbal means in a given material environment, in situations that are co-produced by others. Thus, subjectivity is linked to situations and interactions, rather than just to individual characteristics; to “patient positions,” rather than “patient perspectives.”

Author Biography

Jeannette Pols, University of Amsterdam

University of Amsterdam

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Published

2024-06-17

How to Cite

Pols, J. (2024). Enacting Appreciations: Beyond the Patient Perspective. Novos Debates, 9(1). https://doi.org/10.48006/2358-0097/V9N1.E9105

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